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Study Recruitment

Study Recruitment

Through studies such as these, arthritis will be better understood and new and improved approaches to management will be identified and implemented. We hope to:

  • link you with Canadian researchers who are using the Internet, telephone or mail to conduct national arthritis research;
  • provide you with opportunities to participate in research studies in your geographic region, if available
  • provide an opportunity for people with arthritis from across Canada to be able to participate in arthritis research from the comfort of their homes.

Please note: The research studies listed on this site have received ethics committee approval. The opportunities posted here do not include clinical trials.

How can I submit my study?

Download the Patient Study Checklist [PDF] and submit it to research@arthritis.ca / 1.800. 321.1433. Please note that we will not post opportunities that do not meet the criteria set out in our policy.

Current Studies

  • Exploring the transition from pediatric to adult health care

    Investigators:

    Dr. Christine Cassidy, Assistant Professor, School of Nursing Dalhousie University (ccassidy@Dal.Ca)

    Jackie Pidduck, Transition Coordinator, IWK Health Centre (Jacklynn.Pidduck@iwk.nshealth.ca)

    Research host institution: IWK Health Center

    Background:
    Given significant advancements in medical treatment and technology in recent decades, many children with medical complexities are living into adulthood and accessing services in the adult care system. As a result, the process of transition of care of youth and young adults with complex health care needs into the adult care system has been identified as a key health system priority. There are many differences between adult and pediatric health care models and youth are tasked with navigating and coordinating care in a new health care system making this a very challenging process. As a result, youth who are not prepared for the autonomous environment of adult care may struggle to adapt.

    These challenges are not simply about navigating a new system. A growing body of literature highlights poor clinical outcomes for patients post-transfer. To address these gaps, researchers have developed structured interventions to support the transition from pediatric to adult care. Despite the available evidence on transition interventions, challenges exist when implementing evidence-based interventions into care. While some national and international evidence exists related to the transition to adult care; an understanding of the local context and culture is essential to building interventions that address local needs and strengths.

    Purpose of the study:
    This study will aim to explore current practices and experiences of transition from pediatric to adult care from the perspective of patients, caregivers, and health care providers.

    Eligibility:

    1. Pediatric patients (13-25 years of age) currently in the process of transitioning from pediatric to adult care,
    2. Former pediatric patients (aged 13+) who have transferred to adult care within the past 3 years,
    3. Caregivers whose child is being cared for by at least one pediatric specialist,
    4. Caregivers whose child has transferred to adult care within the past 3 years.

    To be eligible, patients must have been diagnosed with at least 1 of the following three health conditions: Inflammatory Bowel Disease, Diabetes, or Juvenile Idiopathic Arthritis and have received pediatric care at the IWK Health Centre.

    Participation details:
    Participants will be asked to attend 1 virtual focus group with other transition aged patients or their caregivers. During the focus group a research team member will ask questions about your experience with any barriers and enablers to transitioning from pediatric to adult care.

    Confidentiality protocols:
    The Zoom meeting will be password protected to ensure that no one can access the virtual space and overhear any information shared by participants during the focus groups. We will provide participants with details related to privacy on Zoom (e.g., ensuring they are in a private location, use headphones). The session will be recorded but the recordings will be stored as encrypted files and uploaded directly to the IWK secure network. Each participant will be assigned a unique participant identification number and will join the virtual videoconference labelled with this de-identified number. Therefore, all information provided during the focus group discussion will never be linked in any way to participants’ identifying information such as their name or contact information.

    Location:
    This study will be conducted using Zoom

    Recruitment start and end date:
    Start: November 2020
    End: August 2021

    For more information:
    Please contact the Research Assistant, Liam Rowe at liam.rowe@nshealth.ca or the Research Project Manager, Elizabeth Jeffers at Elizabeth.jeffers@nshealth.ca.

  • Preferences for the non-surgical management of osteoarthritis

    Investigators:
    Dr. Deborah Marshall
    Dr. Gillian Currie

    Research host institution:
    University of Calgary

    Background:
    By 2040, 25% of Canadians will have osteoarthritis. Many factors affect how people take care of their
    osteoarthritis. It is important to understand what matters to patients when designing programs to help
    patients manage their osteoarthritis.

    Purpose of the study:
    The purpose of the study is to get an in-depth understanding of what matters to people in taking care of
    their osteoarthritis. It will also explore who and what people believe influences their osteoarthritis.

    Eligibility:
    Individuals are eligible to participate if they are from Alberta and have been told by their doctor that
    have knee and/or hip osteoarthritis, and have at least one joint that has not undergone replacement
    surgery. Participants must be 18 years of age or older, and be able to communicate in English.

    Participation details:
    Participants will take part in a one-hour online or telephone interview about their experiences taking
    care of their osteoarthritis, and complete a brief online survey prior to that. Participants will receive a
    $10 gift card in thanks for their participation.

    Confidentiality protocols:
    Information collected as part of this research project will be kept confidential and will be protected at all
    times during and after the study. It will only be accessed by the research team members for research
    purposes.

    Geographic location:
    Alberta, Canada

    Recruitment start and end date:
    Recruitment for the study began on December 17, 2020 and is anticipated to continue until June 2021.

    For more information:
    Please contact the study coordinator at Bryanne.kennedy@ucalgary.ca or (403) 441-3655

    This research has been approved by the University of Calgary Conjoint Health Research Ethics Board
    REB20-0671.

  • Promoting engagement in physical activity among young people with juvenile idiopathic arthritis: Development of a social network-based intervention

    Researchers: Sabrina Cavallo Ph.D., Dr Ciarán Duffy, Jennifer Stinson, Ph.D., Karine April Toupin, Ph.D.  

    Institution: Université de Montréal et Centre de recherche interdisciplinaire en réadaptation du Montréal Métropolitain (CRIR)

    We would like to get the opinion of young people living with juvenile idiopathic arthritis (JIA) on JIActiv, a social media-based group intervention aimed at promoting physical activity.

    To participate in the study, young people need to meet the following criteria:
    1) Be between 13 and 25 years of age,
    2) Have been diagnosed with JIA by a paediatric rheumatologist,
    3) Understand and be able to express themselves in English or French,
    4) Have an e-mail address or create one for the purpose of the study;
    5) Have access to an electronic device giving access to the internet.

    Participation in the study involves two one-hour interviews with the young person as well as filling out a questionnaire that will take about 15-min. Young people who are interviewed will be compensated for their participation in the form of gift certificates that will be mailed to them after each interview.

    We would also like to get the opinion of parents of young people with juvenile idiopathic arthritis (JIA) on JIActiv, a social media-based group intervention aimed at promoting physical activity.

    To participate in the study, parents need to meet the following criteria:
    1) Have at least one child aged between 13 and 25 years who lives with JIA,
    2) Understand and be able to express themselves in English or French,
    3) Have an e-mail address or create one for the purpose of the study;
    4) Have access to an electronic device giving access to the internet.

    Participation in the study involves two one-hour interviews with the parent as well as filling out a questionnaire that will take about 15-min. Parents who are interviewed will be compensated for their participation in the form of gift certificates that will be mailed to them after each interview.

    Interviews will be anonymized to maintain participant confidentiality. All research data will be kept on a secured server of the Institut universitaire sur la réadaptation en déficience physique de Montréal (IURDPM) and all files will be password protected.

    If you are interested, please contact Sabrina Cavallo, researcher at the University of Montreal, at 514-343-7217 or by Email at sabrina.cavallo@umontreal.ca.

  • Inside Trials - An interview of clinical trials and clinical reporting

    Researchers are inviting individuals with arthritis who have previously taken part in a clinical trial of a prescription drug to participate in an interview study to share their experiences of taking part in a trial.

    Why participate in this study? Patients play a key role in research as participants in clinical trials and learning about trials from the patient perspective is important for improving arthritis research. We are interested to learn more about the experiences and views of people who have taken part in a clinical trial. As part of the study, we would like to find out how trial participants view the importance of publishing the results of trial research.

    Those who can take part in the study have:

    • Participated in a clinical trial of a prescription drug prior to the last 12 months and within the last 5 years,
    • participated in the trial as a patient with arthritis or another health condition (rather than as a “healthy volunteer”), and 
    • were 18 years or older when participating in the trial.

    Participating in this study would involve taking part in an interview of about 60 minutes and possibly a 30-minute follow-up interview. Interviews will be held in Victoria and Vancouver. In order to acknowledge the time taken to participate in this project, each participant will receive an honorarium of $50. 

    Additional information about the study: The study will also involve interviews with clinical trial investigators, university administrators, research ethics board members and individuals who have participated in other types of clinical drug trials to provide additional perspectives on clinical trials and trial reporting. The closing date of the project is August 31, 2021.

    Contact Details: Those interested in participating or finding out more information can contact Co-Investigator Richard Morrow at rlmorrow@mail.ubc.ca or visit www.insidetrialsstudy.ca

    This study received ethics approval (#H18-03458) through the University of British Columbia
    Behavioural Research Ethics Board.

  • YAWNS NB – Your Answers While Needing Sleep in New Brunswick

    Names of Investigators on the Team:
    Dr. David Gardner (project lead), Dalhousie University
    Dr. Andrea Murphy (co-lead), Dalhousie University
    Dr. Justin Turner (co-investigator), Université de Montréal
    Dr. Margaret Radja (co-investigator), Dalhousie University
    Dr. Sandra Magalhaes (co-investigator), University of New Brunswick

    Research Host Institution:
    Dalhousie University

    Background:
    The most common approach to managing insomnia is to take sleeping pills. This approach is associated with a high risk for falls, bone fractures and other injuries, drug interactions with pain medications and others. Less well known is a type of sleep therapy known as Cognitive Behavioural Therapy for Insomnia (CBTi). In the past, CBTi was available from psychologists and other trained therapists only. Now, there are new ways to get access to CBTi, including self-guided books, apps for your phone, and online services. In the short-term, CBTi is as effective as sleeping pills without the risk of serious side effects, and in the long-term it is the more effective and safer option. Older adults living in New Brunswick have a high rate of use of sleeping pills compared to the rest of Canada. It is important that they learn about the safer option - CBTi.

    Purpose of the study:
    Our study aims to measure the impact of sharing information about different options for managing insomnia using mailed information packages. 

    Eligibility Criteria:
    1) 65 years of age and older
    2) taking sleeping pills
    3) living in New Brunswick
    4) comfortable with communicating in English

    Participation Details (including time commitment and possible risks):
    There is no travel required. Participation will be done by telephone. After enrolling, participants will engage in 2 telephone interviews that will be conducted 6 months apart. Each interview is expected to take 60-90 minutes.

    Learn more/contact research team:
    Call: 1 844 929 6762
    Email: YAWNS@dal.ca
    Web: https://sleepstudy.ca  

    Confidentiality Protocols:
    Participants will provide informed consent to be eligible to participate. Collected research data will be stored on a secure, encrypted server of Dalhousie University. The final dataset will be completely de-identified.  

    Geographic Location:
    This study will involve people living in New Brunswick.

    Recruitment Start and End Date:
    Recruitment for this study will take place between November 2020 – September 2021.

    This study received approval from the Health Sciences Research Ethics Board. REB #: 2020-5184.