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Study Recruitment

Study Recruitment

Through studies such as these, arthritis will be better understood and new and improved approaches to management will be identified and implemented. We hope to:

  • link you with Canadian researchers who are using the Internet, telephone or mail to conduct national arthritis research;
  • provide you with opportunities to participate in research studies in your geographic region, if available
  • provide an opportunity for people with arthritis from across Canada to be able to participate in arthritis research from the comfort of their homes.

Please note: The research studies listed on this site have received ethics committee approval. The opportunities posted here do not include clinical trials.

How can I submit my study?

Download the Patient Study Checklist [PDF] and submit it to research@arthritis.ca / 1.800. 321.1433. Please note that we will not post opportunities that do not meet the criteria set out in our policy.

Current Studies

  • Measuring the physiotherapy therapeutic relationship.

    Research team at the University of Alberta:
    Erin McCabe
    Dr. Maxi Miciak
    Dr. Mary Roduta Roberts
    Dr. Linda Sun
    Dr. Douglas P Gross 

    What is the purpose of this study?
    A team of researchers from the University of Alberta are doing a research project to better understand patient-physiotherapist relationships in the care of people with inflammatory arthritis and other chronic conditions affecting joints and muscles.

    What would I have to do?
    We are inviting people who have had 3 or more appointments with the same physiotherapist to complete a one-time survey. The study is open to anyone with inflammatory arthritis (e.g., rheumatoid arthritis, ankylosing spondylitis, etc.), who is 16 years of age or older. 

    The survey is anonymous, your physiotherapist will not have access to your responses. It will take around 15-20 minutes to complete. 

    If you would like to participate, please follow the survey link below to learn more and complete the survey: https://ca.surveygizmo.com/s3/50019437/Physiotherapy-Therapeutic-Relationship 

    What are the potential risks and discomforts? 
    There are no expected risks to you from this study. It is not possible to know all of the risks that may happen, but we have taken all reasonable safeguards to minimize any known risks.

    The survey will be available June 8, 2020 and will close on August 31, 2020. A paper copy of the survey is available from Erin McCabe (contact information below). You may also contact her for more information about this research. 

    Contact information:
    Phone: 780-492-2690
    E-mail: emccabe@ualberta.ca

    The plan for this study has been reviewed for its adherence to ethical guidelines by a Research Ethics Board at the University of Alberta (Pro00086206). Study title: Measuring the physiotherapy therapeutic relationship.  

  • Understanding the experiences of individuals with rheumatic diseases during the COVID-19 pandemic (UNIFIED)

    Investigators:
    Dr. Mary De Vera
    Dr. Antonio Avina-Zubieta
    Dr. Kam Shojania

    Research host institution:
    University of British Columbia/Arthritis Research Canada

    Background:
    The COVID-19 pandemic has brought tremendous challenges for people living with arthritis who are vulnerable to infections yet need complex, continual care. It is important to understand patients’ experiences during this time to inform best practices and optimize care.

    Purpose of the study:
    To understand the impacts of the COVID-19 pandemic on patients with arthritis, specifically on: a) rheumatic disease treatment (e.g. treatment delays); b) mental health and psychosocial factors; and c) activities of daily living (e.g. self-care).

    Eligibility: 
    Individuals are eligible to participate if they: are 18 years or older; have been diagnosed with a rheumatic disease (e.g. ankylosing spondylitis, gout, juvenile idiopathic arthritis, osteoarthritis, psoriatic arthritis, rheumatoid arthritis, systemic lupus erythematosus); and are able to communicate in English or French.

    Participation details:
    Participants will be asked to complete an online survey (in English or French) which takes approximately 25 minutes. There are no known risks to participating.  

    Confidentiality protocols:
    The survey is hosted on Qualtrics, a Canadian survey platform, which fully complies with the British Columbia Freedom of Information and Protection of Privacy Act.   Survey responses are encrypted and stored on a secure server at the University of British Columbia.

    Geographic location: This is an international survey

    Recruitment start and end date:
    Recruitment for the study began on April 23, 2020.  We anticipate to recruit for at least 1 year.

    For more information:
    Please contact the study coordinator at louisega@mail.ubc.ca or (604) 822-5697

    This study has been approved either by the full Behavioural REB or by an authorized delegated reviewer.

  • Inside Trials - An interview of clinical trials and clinical reporting

    Researchers are inviting individuals with arthritis who have previously taken part in a clinical trial of a prescription drug to participate in an interview study to share their experiences of taking part in a trial.

    Why participate in this study? Patients play a key role in research as participants in clinical trials and learning about trials from the patient perspective is important for improving arthritis research. We are interested to learn more about the experiences and views of people who have taken part in a clinical trial. As part of the study, we would like to find out how trial participants view the importance of publishing the results of trial research.

    Those who can take part in the study have:

    • Participated in a clinical trial of a prescription drug prior to the last 12 months and within the last 5 years,
    • participated in the trial as a patient with arthritis or another health condition (rather than as a “healthy volunteer”), and 
    • were 18 years or older when participating in the trial.

    Participating in this study would involve taking part in an interview of about 60 minutes and possibly a 30-minute follow-up interview. Interviews will be held in Victoria and Vancouver. In order to acknowledge the time taken to participate in this project, each participant will receive an honorarium of $50. 

    Additional information about the study: The study will also involve interviews with clinical trial investigators, university administrators, research ethics board members and individuals who have participated in other types of clinical drug trials to provide additional perspectives on clinical trials and trial reporting. The closing date of the project is August 31, 2021.

    Contact Details: Those interested in participating or finding out more information can contact Co-Investigator Richard Morrow at rlmorrow@mail.ubc.ca or visit www.insidetrialsstudy.ca

    This study received ethics approval (#H18-03458) through the University of British Columbia
    Behavioural Research Ethics Board.

  • Optimizing early treatment strategies in early RA through shared decision making

    Funding Sponsor: Canadian Initiative for Outcomes in Rheumatology Care

    Principal Investigator: Dr. Claire Barber
    Co-Principal Investigator: Dr. Glen Hazlewood
    Co-Investigators: Dr. Nick Bansback, Dr. Linda Li, Dr. Dianne Mosher, Dr. Dawn Richards, Laurie Proulx, Victoria Bohm

    The purpose of this study is to:

    •    Measure how often the patient decision aids get used in the RRDTC rheumatology clinic, and 
    •    To study how using the patient decision aids impacts patients and the clinic.

    Background

    Patient decision aids are tools that help healthcare providers and patients make decisions together.  They do this by giving information about treatment options.  They also help patients make treatment choices that fit with their values.  Lots of people think that patient decision aids are helpful.  But we still don’t have a good understanding of how to best use patient decision aids in clinical practice.

    The Richmond Road Diagnostic and Treatment Centre (RRDTC) rheumatology clinic plans to start using a patient decision aid.  The goal is to help patients with early rheumatoid arthritis (RA) make treatment decisions.  In this project, the researchers will study what the best way to use the decision aid is. 

    What would i have to do?

    You will be asked to take part in a focus group to share your experience of making RA treatment decisions.  You will also be asked what you think about the patient decision aids and how they can be used.  If you are unable to attend a focus group, you may be invited to participate in an interview instead.  The interview or focus group would be approximately 30-60 minutes in length and may be conducted in-person, by phone, or computer.  Additional interviews may be conducted to follow-up on what we learn from the initial focus groups and interviews.  You may participate in as many or as few interviews as you wish.

    What are the risks?

    It is possible that you may feel psychological or mental fatigue while participating in a focus group or interview.  You may choose to take a break or stop at any time.

    If you have any questions about this study or wish to participate, please contact Nicole Spencer at 403-210-8105 or nicole.spencer@ucalgary.ca.

    This study has been reviewed by the full Conjoint Health Research Ethics Board of the University of Calgary on November 07, 2019.

  • Patient Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) Self-Management of Chronic Conditions Survey

    Principal Investigators: Dr. George Kephart, Dr. Tanya Packer

    Funder: Canadian Institutes of Health Research

    The International Chronic and Complex Conditions Research Group (IC3RG) and the PRISM-CC Research Team are recruiting participants for an anonymous and confidential online survey. 

    What is This Study and Survey About?

    Half of all Canadians live with at least 1 chronic condition and more and more people are living with more than 1 chronic condition. Managing more than 1 chronic condition is a lot of work and can be confusing. Better tools are needed to assess patients’ ability to manage and cope with multiple chronic conditions so that we can support patients, improve care, and design better healthcare systems.

    We are developing a questionnaire to help health providers and researchers learn what patients need help with to manage their health conditions. To do this, we need to ask people living with 1 or more chronic conditions about the self-management strategies they use and what they would like their health care providers to ask them about self-management.

    The questions chosen will be a part of the measurement tool we are creating, The Patient Reported Inventory of Self-management of Chronic Conditions (PRISM-CC), that will be designed for patients with complex needs and/or multi-morbidity, whose self-management needs are the most difficult for providers and systems to meet.

    Who Can Participate?

    If you are 18 years of age or older, live with 1 or more chronic conditions (includes mental illness), read/speak English, and have access to the internet, you may be eligible to participate in this online survey. Taking part in this study is voluntary. It is up to you to decide whether to be in the study or not. If you decide not to take part or if you leave the study early, your usual health care will not be affected.

    What Will You Be Asked to Do?

    This survey should take about 40 – 60 minutes to complete. The survey will ask you different questions assessing use of self-management strategies. There are also a few questions to help us learn more about the people completing the survey and living with chronic conditions.

    The purpose of the survey is to hear what you want your health care providers to ask about chronic condition self-management. Your answers to the survey questions will help the research team design a questionnaire that can be used in clinical and research settings to assess patients' ability to self-manage their chronic conditions. Survey responses will only be used for the purpose of this research study. 

    Upon completion of the survey, you will have a chance to enter in a draw for 1 of 4 $100.00 Amazon gift cards! If you enter the draw, your email address will not be linked to your survey answers. 

    • Complete the survey by following this link: https://surveys.dal.ca/opinio/s?s=55372
    • If you have any questions, please contact the PRISM-CC Research Team at prismcc@dal.ca

    Confidentiality and Anonymity

    The information that you provide in the online survey is anonymous and confidential. The information you give us about who you are (such as age, gender identity, and types of chronic conditions) won’t be connected to you personally but will be used to give us a better picture of the people living with chronic conditions in general. We will use this information from the online survey to better understand who has participated in this study.

    It is anticipated that the results of this study will be published and/or presented in a variety of forums. Survey responses will not be connected to the participant; therefore, participants will not be identified in publications and/or forums. 

    Questions or Concerns?

    If you have questions or need clarification on the survey, please email the PRISM-CC Research Team via email at prismcc@dal.ca.

    This project has received full approval from the Nova Scotia Authority Research Ethics Board. 

  • Project OM: online stress management for preoperative patients

    Principal Investigators: 

    • Madelaine Gierc, MPH, PhD (Kinesiology), PhD Candidate (Clinical Psychology), Department of Psychology, Queen’s University;
    • Dean Tripp, PhD, Associate Professor, Departments of Psychology, Anesthesiology, & Urology, Queen’s University.

    Study Purpose: The vast majority of surgery patients experience stress, worry, and/or anxiety before their operation (“preoperative distress”). Not only can these feelings be unpleasant, but they are also associated with increased risk of experiencing a negative health event. The purpose of this study is to test the effectiveness of an online stress management program for lessening preoperative distress in patients preparing for knee, hip, or shoulder surgery.

    Questions about study and to get involved: If you have any questions, or want to get involved, do not hesitate to contact the research team at preop.om@gmail.com. We will respond to your e-mail within 48 hours.

    This research protocol has been reviewed for ethical compliance by the Queen's University Health Sciences and Affiliated Teaching Hospitals Research Ethics Board (HSREB).

    Research Ethics: For ethics concerns please contact the Queen’s University Health Sciences and Affiliated Teaching Hospitals Research Ethics Board (HSREB) at 1-844-535-2988 (Toll free in North America) or clarkaf@queensu.ca. For research conducted outside of North America use: 1-613-533-2988. Please note: if non-English speaking participants wish to contact the Chair for ethics concerns, translation assistance may be necessary, as the REB Chairs communicate in English only.

  • @Work: A study of millennials with rheumatic conditions

    What support do you need at work? Help us develop recommendations for employers. If you're 18-35 & live with juvenile arthritis, lupus or another rheumatic condition, we want to hear from you.

    Learn more: https://tinyurl.com/ArthritisEmploymentStudy

  • Coronary artery disease and inflammatory arthritis

    Coronary artery disease (CAD) is more common in women with inflammatory arthritis. Inflammatory arthritis pain can present as chest and shoulder pain and is difficult to distinguish from cardiac pain.

    If you are a woman greater than 55 years of age with rheumatologist diagnosed inflammatory arthritis (rheumatoid psoriatic or ankylosing spondylitis) and established CAD (history of MI, percutaneous intervention [PCI], and/or coronoary artery bypass graft surgery) and interested in participating in a focus group to inform the development of an innovative mobile and web-based health solution for women, please contact Dr. Monica Parry.

    Contact details:

    Dr. Monica Parry, University of Toronto
    (416) 946-3561
    Monica.parry@utoronto.ca

    Sessions will be one hour in length. Refreshment and a $25 gift card will be provided.

    This research project received ethics approval (#34908) through the University of Toronto Research Ethics Committee.

  • Exercise & Rheumatoid Arthritis

    Do you have rheumatoid arthritis? Do you want to be more active?

    Researchers at McGill/MUHC are comparing the effects of two different 12-week exercise programs designed for people with RA.

    • Adults 18 to 65 years of age who are not currently exercising
    • Individually supervised exercise program or home-based exercise program
    • Measurement of body composition, resting metabolic rate, muscle strength and other fitness measures before and after the program
    • Participants stay on all usual RA medicines throughout the study

    For more info:

    Call Alex at 514-398-4184 ext 8910
    Email: RAexercisestudy@gmail.com

    This research project received ethics approval (##2018-3192) through the McGill University Health Centre Research Ethics Board.

  • Expectations and educational needs of Canadian rheumatologists, rheumatology fellows and patients in the field of precision medicine

    Principal investigator:  
    Doctor Laetitia Michou, MD, PhD, Rheumatologist CHU de Québec-Université Laval

    Co-investigators:  
    Doctor Louis Bessette, MD, MSc, FRCPC, Rheumatologist CHU de Québec-Université Laval,  
    Doctor Paul R. Fortin, MD, MPH, FRCPC, Rheumatologist CHU de Québec-Université Laval,  
    Doctor Diane Lacaille, MD, MPH, FRCPC, Rheumatologist Arthritis Research Canada, Vancouver,  
    Doctor Joyce Dogba, MD, PhD, Université Laval,
    Jean Légaré, Ph.D, Arthritis Consumer Advisory Board (PIRA),
    Doctor Sophie Ruel-Gagné, Fellow in rheumatology  

    Project Information:   
    Precision medicine, a personalized medicine based on biomarkers, is a booming field. In recent years, there have been a number of global initiatives such as the Human Genome Project, the 100,000 Genomes Project in the United Kingdom and the US Precision Medicine Initiative whose purpose is to offer personalized care to each individual. Pharmacogenomics, a discipline that studies the role of genes in drug response and drug toxicity, is an important part of precision medicine. Some genetic tests are already widely prescribed by rheumatologists to improve patient care, and new tests should gradually appear and help make better treatment decisions.  

    Some studies have also focused on the knowledge and expectations of patients, but none have been done in rheumatology. They demonstrated that patients generally have a favorable attitude to the integration of precision medicine into clinical practice, but that their knowledge and understanding of genetic principles and tests are limited. It is therefore essential to better inform patients so that they are able to consent in a free and informed manner and to understand the results of the tests so as to integrate them into their shared decision-making. This project will assess the expectations and educational needs in the field of precision medicine among patients with rheumatic diseases, with the intent to develop educational tools that meet their needs. 

    Your Participation:   
    For this project, you will have to complete a 20–question survey divided into four sections: experience, knowledge, expectations and educational needs in the field of precision medicine (the estimated time to complete the questionnaire is 10 minutes). 

    Contact Information: 
    If you have questions about the research project, please contact Sophie Ruel-Gagné (sophie.ruel-gagne.1@ulaval.ca), co-investigator of this project. 

    This study has been approved by the CER du CHU de Québec-Université Laval, #2018-4065

  • Referral to rheumatologists by physiotherapists to enhance access to care: ability and acceptability.

    Principal investigators: Debbie Feldman, PhD, Université de Montréal, Sasha Bernatsky, MD PhD, Université McGill, Linda Woodhouse, PhD, University of Alberta 

    Project description and objectives: Our project, funded by the Canadian Initiative for Outcomes in Rheumatology Care (CIORA) of the Canadian Rheumatology Association focuses on the identification process by physiotherapists of newly affected patients with  inflammatory arthritis and the consequences of rapid referral of these patients to rheumatology care. The purpose of the focus groups is to explore how to facilitate appropriate referrals in rheumatology and optimize the care of a patient with inflammatory arthritis. The focus group will be composed of 4-8 patients and the main goal is to help optimize patient care in inflammatory arthritis. 

    If you are interested in further details about this research, please contact Tatiana Rodriguez, Tatiana.orozco.rodriguez@gmail.com. 

    Read the Invitation
  • The Motherhood and Chronic Illness (MaCI) mixed methods cohort study

    Study Leads:

    • Kathleen Chaput, PhD, Assistant Professor, Department of Obstetrics and Gynecology, University of Calgary
    • ​Natalie Scime, MSc, PhD Candidate, Department of Community Health Sciences, University of Calgary

    BACKGROUND: The Motherhood and Chronic Illness (MaCI) study is being done to address a gap in knowledge about the experiences and outcomes of mothers with chronic illness and their children from pregnancy to early childhood, with a special focus on infant feeding. Findings from this study can be used to raise awareness of the needs and experiences of mothers with chronic illness, and to design appropriate materials and services that promote maternal, child, and family health.

    WHAT IS THE PURPOSE OF THE STUDY? The primary purpose of this study is to investigate what factors and support experiences influence infant feeding among mothers with chronic illness in Alberta. Our team is also interested in studying topics such as medication and health service use, physical and mental health, and labour and delivery outcomes among mothers with chronic illness and their children.

    ELIGIBILITY: To be eligible for the MaCI Study, you must be: 

    • Less than 32 weeks pregnant with one baby 
    • Aged 18 or older
    •  Living with at least one pre-existing physical health condition (including forms of arthritis)
    • Planning to try breastfeeding or expressing breast milk for your baby 
    • A resident of Alberta 
    • Comfortable completing online questionnaires in English

    Over the next two years, we are planning to enroll 400 pregnant women with pre-existing physical health conditions from across Alberta into the MaCI study. Each participant will be invited to complete 3 web-based questionnaires, which take about 30 minutes each, starting in pregnancy and up to the first 6 months after their baby is born. The study can be completed entirely online, through email and the internet, and participants will receive a gift card as a thank you for each questionnaire completed.

    To learn more and sign up, please contact:
    Natalie Scime
    maci.study@ucalgary.ca
    403-441-8465
    research.ucalgary.ca/MaCI

    Ethics ID-REB19-0443 Study Title-The Motherhood and Chronic Illness (MaCI) study, PI-K.Chaput, Version number/date: 4.0 September 2019. This study has been approved by the University of Calgary Conjoint Health Research Ethics Board.