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Study Recruitment

Study Recruitment

Through studies such as these, arthritis will be better understood and new and improved approaches to management will be identified and implemented. We hope to:

  • link you with Canadian researchers who are using the Internet, telephone or mail to conduct national arthritis research;
  • provide you with opportunities to participate in research studies in your geographic region, if available
  • provide an opportunity for people with arthritis from across Canada to be able to participate in arthritis research from the comfort of their homes.

Please note: The research studies listed on this site have received ethics committee approval. The opportunities posted here do not include clinical trials.

How can I submit my study?

Download the Patient Study Checklist [PDF] and submit it to research@arthritis.ca / 1.800. 321.1433. Please note that we will not post opportunities that do not meet the criteria set out in our policy.

Current Studies

  • Development of a Patient-Centered Rheumatoid Arthritis (RA) Quality of Care Survey

    Principal Investigator:
    Dr. Claire Barber

    Co-investigators:
    Dr. Cheryl Barnabe
    Dr. Glen Hazlewood
    Dr. Joanne Homik
    Dr. Diane Lacaille
    Dr. Linda Li
    Dr. Paul MacMullan
    Dr. Deborah Marshall
    Dr. Dianne Mosher
    Dr. James Rankin
    Dr. Karen Then
    Karen Tsui
    Kelly English

    Research host institution: 
    University of Calgary

    Background:
    We created a survey for RA patients that measures quality of arthritis care. The survey looks at whether patients have received counselling for smoking cessation, exercise, and lifestyle habits. Existing surveys for RA patients often do not include these topics. It is also difficult to get this information through other methods such as patient charts or medical records. By including these topics in our survey, we can assess and improve quality of arthritis care from the patient perspective.

    Purpose of the study:
    We invite people living with RA to review the RQCS online and to share their thoughts about the survey in an online interview. The feedback we receive will help us improve the survey.

    Eligibility criteria:
    Individuals are eligible to participate if they are 18 years or older and have access to a device with internet.

    Participation details including time commitment and possible risks:
    Participants will be asked to test our quality of care survey online, which will take about 15-30 minutes. Then participants will be asked to share feedback about the survey in an online interview, which will take 1-1 ½ hours. There are no known risks to participating.

    Confidentiality protocols:
    The survey is hosted on Qualtrics, a Canadian survey platform. Survey responses are encrypted and stored on secure servers in Canada. Online interviews will be done through a version of Zoom that is licensed by the University of Calgary as this is more secure.

    Geographic location: Canada

    Recruitment start/end date: Sept 1st, 2020-Dec 1st, 2020

    For more information:
    Please contact the study coordinator, Kiran Dhiman, at kdhiman@ucalgary.ca.

    This study has been approved by the University of Calgary Conjoint Health Research Ethics Board (REB19-0677).

  • The Life Experiences of Individuals with Arthritis in comparison to Non-Arthritis Individuals

    You are being invited to take part in a research study. Before you decide it is important for you to understand why the research is being done and what it will involve. Please take time to read the following information carefully and discuss it with others if you wish. If anything is not clear or if you would like more information, please contact the researcher via the email given below. Take time to decide whether or not you wish to take part in the study. 

    Survey to participate in the study: https://mdxl.eu.qualtrics.com/jfe/form/SV_eQZWbTDipoBas97

    If you require further information or have any questions or then please contact:

    Researcher: Marianne Bahadur 
    Mb2241@live.mdx.ac.uk

    Supervisor: Dr Jackie Meredith 
    J.Meredith@mdx.ac.uk

    What is the purpose of the project/study?
    The purpose of this study is to contribute to the limited research that exists on the experience of individuals with Arthritis.

    Why have I been chosen?
    You have been invited to take part in this study because either you fit the criteria for the Arthritis group, or you fit the criteria for the control group (non-Arthritis). Altogether 100 participants will take part in this study.

    Do I have to take part?
    It is up to you to decide whether or not to take part. You can withdraw from the study at any time during the questionnaire and you will be asked if you wish to withdraw your results when you’ve completed the questionnaire as well, and if you wish to you can withdraw up until 23rd November 2020, it will not be possible to withdraw data after this point as the data will need to be analysed at this point. 

    What will I have to do? 
    You will be asked to give answers to questions in a questionnaire which will take approximately 15-30 minutes of your time. 

    What are the possible risks or benefits of taking part? 
    There are no known risks in participating in this project. We hope that participating in the study will help you. However, this cannot be guaranteed. The information we get from this study may help us to gain more insight on the experiences of those with arthritis. Although this study does not aim to intentionally cause distress to the participant, if you happen to experience distress following the questionnaire, there will be some contact details for helpful organisations you can contact at the end of the questionnaire.

    Data Protection and Confidentiality 
    Personal data is any data that can lead to the identification of a specific (living) person. It can be obviously identifiable data such as name or ID number, but it can also be a combination of "innocent" data such as age, height/weight, wealth, job position, company, city, etc. that when combined can lead to the identification of a person. Personal data (e.g. your name, email address, voice or any data that can identify you) will be collected by this study and your confidentiality will be protected. Future uses of the data could entail publications however data will remain in a password protected document and reuse will not permit attempts to recontact or identify participants, data will remain anonymised and exclude commercial use. 

    What will happen to the results of the research study? 
    The results of the research study will be used as part of a Postgraduate dissertation. The results may also be presented at conferences or in journal articles. 

    The study has received full ethical clearance from the Psychology Research Ethics Committee.  

  • Understanding falls in adults living with chronic pain

    Investigators: 
    Dr. Etienne Bisson (principal investigator), Dr. Marcia Finlayson, Dr. Rosemary Wilson, and Dr. Scott Duggan.

    Research Host Institution: Queen’s University / Kingston Health Sciences Centre

    Background: Adults with chronic pain have a high prevalence of falls (>40%) regardless of their age. Some risk factors where identified such as decrease mobility and multiple pain sites. However, the circumstances and consequences of these falls are unknown to this date. In order to find strategies to prevent falls in this population, we need to understand why, how and when falls happen and the impact on individuals with chronic pain. 

    Purpose: To examine circumstances and consequences of falls experience in adults living with chronic pain.

    Eligibility criteria: Adults 18 years of age or older with chronic pain (persistent pain for more than 3 months) who experienced a fall in the previous year are invited to participate.

    Participation details:  Participants are asked to complete an online survey which takes approximately 15 minutes to complete. Survey responses are completely anonymous. To participate, you can access the survey with the link: bit.ly/painfall

    Recruitment start and end date: the survey is ongoing and will end on November 30th 2020.

    Knowledge translation: Study findings will be disseminated through publications in scientific journals. We will also disseminate an infographics summarizing our findings via the same social media channels that were used for recruitment.

    Contact information: Please contact Dr. Etienne J. Bisson for more information at chronicpain.research@kingstonhsc.ca

    This study received ethics clearance by Queens University Health Sciences & Affiliated Teaching Hospitals Research Ethics Board (HSREB)

  • Understanding the experiences of individuals with rheumatic diseases during the COVID-19 pandemic (UNIFIED)

    Investigators:
    Dr. Mary De Vera
    Dr. Antonio Avina-Zubieta
    Dr. Kam Shojania

    Research host institution:
    University of British Columbia/Arthritis Research Canada

    Background:
    The COVID-19 pandemic has brought tremendous challenges for people living with arthritis who are vulnerable to infections yet need complex, continual care. It is important to understand patients’ experiences during this time to inform best practices and optimize care.

    Purpose of the study:
    To understand the impacts of the COVID-19 pandemic on patients with arthritis, specifically on: a) rheumatic disease treatment (e.g. treatment delays); b) mental health and psychosocial factors; and c) activities of daily living (e.g. self-care).

    Eligibility: 
    Individuals are eligible to participate if they: are 18 years or older; have been diagnosed with a rheumatic disease (e.g. ankylosing spondylitis, gout, juvenile idiopathic arthritis, osteoarthritis, psoriatic arthritis, rheumatoid arthritis, systemic lupus erythematosus); and are able to communicate in English or French.

    Participation details:
    Participants will be asked to complete an online survey (in English or French) which takes approximately 25 minutes. There are no known risks to participating.  

    Confidentiality protocols:
    The survey is hosted on Qualtrics, a Canadian survey platform, which fully complies with the British Columbia Freedom of Information and Protection of Privacy Act.   Survey responses are encrypted and stored on a secure server at the University of British Columbia.

    Geographic location: This is an international survey

    Recruitment start and end date:
    Recruitment for the study began on April 23, 2020.  We anticipate to recruit for at least 1 year.

    For more information:
    Please contact the study coordinator at louisega@mail.ubc.ca or (604) 822-5697

    This study has been approved either by the full Behavioural REB or by an authorized delegated reviewer.

  • Inside Trials - An interview of clinical trials and clinical reporting

    Researchers are inviting individuals with arthritis who have previously taken part in a clinical trial of a prescription drug to participate in an interview study to share their experiences of taking part in a trial.

    Why participate in this study? Patients play a key role in research as participants in clinical trials and learning about trials from the patient perspective is important for improving arthritis research. We are interested to learn more about the experiences and views of people who have taken part in a clinical trial. As part of the study, we would like to find out how trial participants view the importance of publishing the results of trial research.

    Those who can take part in the study have:

    • Participated in a clinical trial of a prescription drug prior to the last 12 months and within the last 5 years,
    • participated in the trial as a patient with arthritis or another health condition (rather than as a “healthy volunteer”), and 
    • were 18 years or older when participating in the trial.

    Participating in this study would involve taking part in an interview of about 60 minutes and possibly a 30-minute follow-up interview. Interviews will be held in Victoria and Vancouver. In order to acknowledge the time taken to participate in this project, each participant will receive an honorarium of $50. 

    Additional information about the study: The study will also involve interviews with clinical trial investigators, university administrators, research ethics board members and individuals who have participated in other types of clinical drug trials to provide additional perspectives on clinical trials and trial reporting. The closing date of the project is August 31, 2021.

    Contact Details: Those interested in participating or finding out more information can contact Co-Investigator Richard Morrow at rlmorrow@mail.ubc.ca or visit www.insidetrialsstudy.ca

    This study received ethics approval (#H18-03458) through the University of British Columbia
    Behavioural Research Ethics Board.

  • Optimizing early treatment strategies in early RA through shared decision making

    Funding Sponsor: Canadian Initiative for Outcomes in Rheumatology Care

    Principal Investigator: Dr. Claire Barber
    Co-Principal Investigator: Dr. Glen Hazlewood
    Co-Investigators: Dr. Nick Bansback, Dr. Linda Li, Dr. Dianne Mosher, Dr. Dawn Richards, Laurie Proulx, Victoria Bohm

    The purpose of this study is to:

    •    Measure how often the patient decision aids get used in the RRDTC rheumatology clinic, and 
    •    To study how using the patient decision aids impacts patients and the clinic.

    Background

    Patient decision aids are tools that help healthcare providers and patients make decisions together.  They do this by giving information about treatment options.  They also help patients make treatment choices that fit with their values.  Lots of people think that patient decision aids are helpful.  But we still don’t have a good understanding of how to best use patient decision aids in clinical practice.

    The Richmond Road Diagnostic and Treatment Centre (RRDTC) rheumatology clinic plans to start using a patient decision aid.  The goal is to help patients with early rheumatoid arthritis (RA) make treatment decisions.  In this project, the researchers will study what the best way to use the decision aid is. 

    What would i have to do?

    You will be asked to take part in a focus group to share your experience of making RA treatment decisions.  You will also be asked what you think about the patient decision aids and how they can be used.  If you are unable to attend a focus group, you may be invited to participate in an interview instead.  The interview or focus group would be approximately 30-60 minutes in length and may be conducted in-person, by phone, or computer.  Additional interviews may be conducted to follow-up on what we learn from the initial focus groups and interviews.  You may participate in as many or as few interviews as you wish.

    What are the risks?

    It is possible that you may feel psychological or mental fatigue while participating in a focus group or interview.  You may choose to take a break or stop at any time.

    If you have any questions about this study or wish to participate, please contact Nicole Spencer at 403-210-8105 or nicole.spencer@ucalgary.ca.

    This study has been reviewed by the full Conjoint Health Research Ethics Board of the University of Calgary on November 07, 2019.

  • Patient Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) Self-Management of Chronic Conditions Survey

    Principal Investigators: Dr. George Kephart, Dr. Tanya Packer

    Funder: Canadian Institutes of Health Research

    The International Chronic and Complex Conditions Research Group (IC3RG) and the PRISM-CC Research Team are recruiting participants for an anonymous and confidential online survey. 

    What is This Study and Survey About?

    Half of all Canadians live with at least 1 chronic condition and more and more people are living with more than 1 chronic condition. Managing more than 1 chronic condition is a lot of work and can be confusing. Better tools are needed to assess patients’ ability to manage and cope with multiple chronic conditions so that we can support patients, improve care, and design better healthcare systems.

    We are developing a questionnaire to help health providers and researchers learn what patients need help with to manage their health conditions. To do this, we need to ask people living with 1 or more chronic conditions about the self-management strategies they use and what they would like their health care providers to ask them about self-management.

    The questions chosen will be a part of the measurement tool we are creating, The Patient Reported Inventory of Self-management of Chronic Conditions (PRISM-CC), that will be designed for patients with complex needs and/or multi-morbidity, whose self-management needs are the most difficult for providers and systems to meet.

    Who Can Participate?

    If you are 18 years of age or older, live with 1 or more chronic conditions (includes mental illness), read/speak English, and have access to the internet, you may be eligible to participate in this online survey. Taking part in this study is voluntary. It is up to you to decide whether to be in the study or not. If you decide not to take part or if you leave the study early, your usual health care will not be affected.

    What Will You Be Asked to Do?

    This survey should take about 40 – 60 minutes to complete. The survey will ask you different questions assessing use of self-management strategies. There are also a few questions to help us learn more about the people completing the survey and living with chronic conditions.

    The purpose of the survey is to hear what you want your health care providers to ask about chronic condition self-management. Your answers to the survey questions will help the research team design a questionnaire that can be used in clinical and research settings to assess patients' ability to self-manage their chronic conditions. Survey responses will only be used for the purpose of this research study. 

    Upon completion of the survey, you will have a chance to enter in a draw for 1 of 4 $100.00 Amazon gift cards! If you enter the draw, your email address will not be linked to your survey answers. 

    • Complete the survey by following this link: https://surveys.dal.ca/opinio/s?s=55372
    • If you have any questions, please contact the PRISM-CC Research Team at prismcc@dal.ca

    Confidentiality and Anonymity

    The information that you provide in the online survey is anonymous and confidential. The information you give us about who you are (such as age, gender identity, and types of chronic conditions) won’t be connected to you personally but will be used to give us a better picture of the people living with chronic conditions in general. We will use this information from the online survey to better understand who has participated in this study.

    It is anticipated that the results of this study will be published and/or presented in a variety of forums. Survey responses will not be connected to the participant; therefore, participants will not be identified in publications and/or forums. 

    Questions or Concerns?

    If you have questions or need clarification on the survey, please email the PRISM-CC Research Team via email at prismcc@dal.ca.

    This project has received full approval from the Nova Scotia Authority Research Ethics Board. 

  • The Motherhood and Chronic Illness (MaCI) mixed methods cohort study

    Study Leads:

    • Kathleen Chaput, PhD, Assistant Professor, Department of Obstetrics and Gynecology, University of Calgary
    • ​Natalie Scime, MSc, PhD Candidate, Department of Community Health Sciences, University of Calgary

    BACKGROUND: The Motherhood and Chronic Illness (MaCI) study is being done to address a gap in knowledge about the experiences and outcomes of mothers with chronic illness and their children from pregnancy to early childhood, with a special focus on infant feeding. Findings from this study can be used to raise awareness of the needs and experiences of mothers with chronic illness, and to design appropriate materials and services that promote maternal, child, and family health.

    WHAT IS THE PURPOSE OF THE STUDY? The primary purpose of this study is to investigate what factors and support experiences influence infant feeding among mothers with chronic illness in Alberta. Our team is also interested in studying topics such as medication and health service use, physical and mental health, and labour and delivery outcomes among mothers with chronic illness and their children.

    ELIGIBILITY: To be eligible for the MaCI Study, you must be: 

    • Less than 32 weeks pregnant with one baby 
    • Aged 18 or older
    •  Living with at least one pre-existing physical health condition (including forms of arthritis)
    • Planning to try breastfeeding or expressing breast milk for your baby 
    • A resident of Alberta 
    • Comfortable completing online questionnaires in English

    Over the next two years, we are planning to enroll 400 pregnant women with pre-existing physical health conditions from across Alberta into the MaCI study. Each participant will be invited to complete 3 web-based questionnaires, which take about 30 minutes each, starting in pregnancy and up to the first 6 months after their baby is born. The study can be completed entirely online, through email and the internet, and participants will receive a gift card as a thank you for each questionnaire completed.

    To learn more and sign up, please contact:
    Natalie Scime
    maci.study@ucalgary.ca
    403-441-8465
    research.ucalgary.ca/MaCI

    Ethics ID-REB19-0443 Study Title-The Motherhood and Chronic Illness (MaCI) study, PI-K.Chaput, Version number/date: 4.0 September 2019. This study has been approved by the University of Calgary Conjoint Health Research Ethics Board.