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Get Involved in Research

Patient Engagement

The Arthritis Society supports patient engagement amongst researchers and consumers throughout the research continuum. Consumer engagement in health research can be defined as consumer participation in any stage of the research continuum, beyond the role of study participants. The level of advisory and/or decision-making responsibilities may vary in any stage of the research process, however, participation must be meaningful and actively collaborative. The term “consumer” or “patient” is an overarching term that includes individuals who have personal experiences with arthritis or their caregivers, which may include family or friends. 

Consumer engagement support – for consumers:  

The following resources have been created to help support consumers as they navigate the research continuum.

The Arthritis Society recommends that all consumers review the Consumer Engagement Resource for Consumers [PDF 117kB] prior to getting involved in any research project. Additional resources have been created to provide an introduction to research, grants, and the peer review process. Please view these additional resources here:  

Consumer engagement support – for researchers: 

The Arthritis Society recommends that all researchers review the  Consumer Engagement Resource for Researchers [PDF 113kB] prior to engaging with consumers. 

Study recruitment: We support recruitment of people living with arthritis by posting study details on our website. It is important to note that the Arthritis Society does not recruit volunteers directly for clinical trials. To submit your study, download the Patient Study Checklist [PDF 100kB] and submit to research@arthrtis.ca. Please note that we will not post studies that do not meet the criteria set out in our checklist.  

Consumer collaborator recruitment opportunities: We support consumer recruitment to research study teams by posting details on our website. Please view the new consumer collaborator opportunities section on our Study Recruitment webpage to view current opportunities. To submit a consumer engagement opportunity (e.g., consumer collaborator or partner for a grant proposal), download the Consumer Collaborator Checklist [PDF 231kB]  and submit to research@arthritis.ca. Please note that we will not post opportunities that do not meet the criteria set out in our checklist. 

Study dissemination: The Arthritis Society is happy to support Arthritis Society funded researchers to disseminate their research outcomes (email research@arthritis.ca with publication updates).

To receive updates on Arthritis Society competitions, award announcements, volunteer opportunities, and research-related events, please fill out this Form to be added to the research mailing list.